Karen Morley reflects on her experience of becoming a consumer author on a Cochrane Review, using her lived experience of Obsessive Compulsive Disorder (OCD) and considers the questions it raised for her about Public Involvement in research.
Patient & Public Involvement
In this blog, written for women, health professionals, policy makers and commissioners, Rachel Plachcinski and Ngawai Moss discuss the lack of evidence for planning pregnancy and maternity care for women with two or more long term health conditions. They explore women’s experiences through their pregnancy journeys: identifying challenges and gaps in understanding, plus what matters to women during pregnancy when living with long term health conditions.
Throughout June, we are shining a spotlight on living with long-term conditions, sharing blogs that include relevant evidence and personal reflections. The series will also include a discussion on Twitter about the impact language can have on people with long-term conditions.
In this blog for people living with a brain tumour, healthcare practitioners and anyone with an interest in brain tumours, Helen Bulbeck, Cochrane consumer representative and director of policy and services for brainstrust, looks at the latest Cochrane evidence on brain tumours and reflects on what this special collection means for the brain tumour community and why collaboration has been key to the success of this work.
Cathering Houghton blogs about what influences people's decisions to take part in randomised trials.
In this blog for informal cancer caregivers, Beverley Lim Høeg and Pernille Envold Bidstrup, who are both psychologists and cancer researchers, look at the challenges faced by those caring for a loved-one with cancer and explore why informal caregivers deserve more support and focus in cancer treatment and research. Pernille is also the mother of a 9 year old cancer survivor.
Caroline Whiting reflects on the milestone of 100 completed Priority Setting Partnerships and the importance of this work with patients, carers and clinicians for making research relevant and useful.
Emma Doble and Marta Santos introduce the Cochrane UK Consumer Champions initiative and invite applications
Karen Morley blogs and draws her experiences as a daunted and delighted volunteer peer reviewer for Cochrane Common Mental Disorders.
Here's a taste of a workshop exploring meaningful consumer engagement in Cochrane, from Cochrane UK and Cochrane Ireland's 2019 symposium.
André Tomlin (@Mental_Elf), from the Beyond The Room team at the 2018 Cochrane Colloquium,#CochraneForAll, in Edinburgh interviews Dr Margaret McCartney (@mgtmccartney), general practitioner, about the practice of evidence-based medicine, relationships and trust.
André Tomlin from The Beyond The Room Team at the 2018 Cochrane Colloquium interviews Mark Taylor, Head of Impact for the Central Commissioning Facility of the National Institute for Health Research, about research impact, his own experience of multiple sclerosis and how Cochrane can involve patients in their work.